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Baby Eliza’s Family

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Baby Eliza was born two months early. Since her birth, she has had several episodes where she stopped breathing in her sleep.  At first, the doctors thought she had Pompe disease and just needed time to grow.  After several tests, it was determined that she was a carrier of Pompe disease, an inherited disorder caused by the buildup of a complex sugar called glycogen in the body’s cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally.  Recently, the doctors were able to diagnosis her with severe obstructive sleep apnea.  Regardless of her diagnosis, her parents Marissa and Denin say that she is a very happy baby, who “loves to be loved on”. The young couple spent 36 nights at RMHC and were very grateful for our services.

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